Images from the Ependymoma Awareness Day.

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Savannah's Story

Savannah spoke at the 2024 Head to the Hill Welcome Reception and Ependymoma Awareness Day event last month in Washington, D.C. She shared her story with strength and grace and spoke about the realities of being a young adult navigating a rare brain tumor diagnosis and survivorship.

Savannah explains, "I noticed that I have transformed a lot since I was diagnosed. I have grown a lot as a person. I've changed in many ways, I am more empathetic towards everyone. I'm not grateful that I got cancer, but I am grateful for the person I have become after cancer."

Savannah plans to continue her advocacy efforts and wants to use her experience with cancer to help others as best she can.

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CERN COMMUNITY

New Release: Third Edition of the Ependymoma Guide

Image of a young survivors celebrating on Ependymoma Awareness Day.

The CERN Foundation, a program of the National Brain Tumor Society, recently released the third edition of the Ependymoma Guide. The goal of this guide is to provide basic facts about ependymoma to increase education and awareness about the rare disease. The focus audience includes newly diagnosed patients, care partners, and advocates.

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A little boy holds a butterfly, a symbol of hope for brain tumor survivors.

Support the Ependymoma Fund for Research and Education

With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.

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The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.

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CONNECT WITH US!

National Brain Tumor Society unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners. Our vision is to conquer and cure brain tumors—once and for all.