Images from the Ependymoma Awareness Day.

Brain Tumor Awareness Month and Ependymoma Awareness Day

This year, NBTS invited ependymoma research partners to host their own awareness day events to elevate the collective voice of the greater community. From these unique and deeply meaningful events, videos and photos were collected, woven together, and shared in order to bring the global community together. The international awareness effort included participation from the following research partners:

Hopp Children's Cancer Center (KiTZ) in Heidelberg, Germany
2022 CERN and Robert Connor Dawes Foundation Scientific Fellowship
Medical University Vienna (MedUni) in Vienna, Austria
CERN PFA Ependymoma Translational Research Award
National Institutes of Health (NIH) in Bethesda, Maryland
NCI-CONNECT Partner
St. Jude Children’s Research Hospital in Memphis, Tennessee
Ependymoma Research Effort in the National Brain Tumor Society’s DNA Damage Response (DDR) Consortium research initiative

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CERN COMMUNITY

Welcome Reception and Ependymoma Awareness Day Event

Ependymoma Awareness Day was held on May 5, 2024, in connection to the Race for Hope in Washington, D.C., and the National Brain Tumor Society flagship advocacy event, Head to the Hill. Ependymoma community members were invited to attend the Welcome Reception which included a time to connect with community members. As a special way to acknowledge the day, there was a creative art experience led by art therapist Alby Gyimah-Boadi from the Marcelle and Patrick Leahy Art Therapy Program at Children’s National, a slideshow featuring photos from previous Ependymoma Awareness Day events beginning in 2012, remarks from ependymoma survivor Savannah Mason, and more. The time together was a powerful reminder of the importance of connection and raising awareness for a rare disease.

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A little boy holds a butterfly, a symbol of hope for brain tumor survivors.

Support the Ependymoma Fund for Research and Education

With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.

MAKE A GIFT

The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.

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CONNECT WITH US!

National Brain Tumor Society unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners. Our vision is to conquer and cure brain tumors—once and for all.