Image of supporters standing in a circle with their arms around each other.

Ependymoma Awareness Day – Virtual Community Gathering

Join the Ependymoma Awareness Day Virtual Community Gathering for an opportunity to support, share, and connect in a welcoming space. As a part of Ependymoma Awareness Day, the National Brain Tumor Society and the CERN Foundation invite you to gather virtually with other ependymoma survivors and care partners on Sunday, May 5, at 1 p.m. ET. This special opportunity is designed to inspire and empower, serving as a reminder that having a rare disease does not mean you are alone. Registration is required. Ependymoma Awareness Day – Virtual Community Gathering will be hosted on Zoom, and specific login details will be provided shortly before the session start time.

EVENT

Head to the Hill Welcome Reception & Ependymoma Awareness Day Event

Image of a woman smiling with a butterfly landing on her finger.

Please join us on Sunday, May 5, at 4 p.m. ET for the Head to the Hill Welcome Reception and CERN Ependymoma Awareness Day Event hosted by the National Brain Tumor Society. This event will provide a casual space for meaningful connection with community members over drinks and appetizers. As a special way to acknowledge Ependymoma Awareness Day, there will be an optional creative art therapy experience, Ependymoma Awareness Day slideshow, remarks, and more. Registration is required.

GET INVOLVED

A Call for Creative Writers

Image of Jon, who is featured as this month's community story.

We are seeking creative writing submissions on the theme of hope. All ependymoma community members, including children, are welcome to submit original poems or short essays about hope to be used in various 2024 Ependymoma Awareness Day material and programming. Your piece might be featured in the virtual program! Please share with someone you think might be interested. Children are encouraged to participate! Email us at administrator@cern-foundation.org. The deadline for submission is Wednesday, April 10.

SUBMIT YOUR WORK

A little boy holds a butterfly, a symbol of hope for brain tumor survivors.

Support the Ependymoma Fund for Research and Education

With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.

MAKE A GIFT

The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.

LEARN MORE

CONNECT WITH US!

National Brain Tumor Society unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners. Our vision is to conquer and cure brain tumors—once and for all.